More than memory loss, Darshini Ayton on dementia

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We also need to listen to people who have experienced the process of navigating the health system for a dementia diagnosis, either as a patient or a caregiver, and their ideas of what needs to change to create a more accessible and equitable system: says Professor Ayton. Photo courtesy Monash University

Associate Professor Darshini Ayton, a leading figure in dementia care and diagnosis, is urging a shift in how society understands the condition. With advancements in biomedical research offering new possibilities for diagnosing and treating dementia, she believes it’s crucial that the public gains a clearer grasp of its symptoms and the support available.

Professor Ayton, Deputy Head of the Monash University Health and Social Care Unit, explains that while memory loss is often considered the hallmark of dementia, the condition manifests in a variety of ways. Changes in mood, difficulties with communication, and other cognitive challenges are equally prevalent but often go unrecognised. By improving understanding across communities, early detection can be improved, allowing those affected to access care and support more quickly.

She highlights the importance of public awareness, particularly as Dementia Action Week approaches. Running from 16-22 September, this national campaign encourages Australians to learn more about dementia and take practical steps to help create more dementia-friendly communities. Simple actions like recognising signs and symptoms, offering kindness, and adjusting environments to be more accessible can make a meaningful difference.

As society grapples with dementia as a growing health challenge, with two-thirds of those living with the condition residing in the community, there is a growing need for awareness. Early recognition and testing are key to managing the condition, yet many still equate dementia solely with memory loss. Professor Ayton urges people to look out for other symptoms, such as confusion in everyday activities or changes in personality, which can be signs that something is amiss. By recognising these early, individuals and families can seek timely medical advice.

Access to appropriate healthcare is another area of focus for Professor Ayton. She points out that people living with dementia, as well as their caregivers, often face hurdles in navigating the health system. It can be a frustrating and exhausting process, leaving many without the support they need. This has inspired her work in advocating for a more accessible and equitable healthcare system. She stresses the importance of listening to the experiences of patients and caregivers to identify where improvements are needed.

Professor Ayton has been at the forefront of dementia research through her work at the Centre of Research Excellence in Enhanced Dementia Diagnosis (CREEDD). The Centre brings together a team of neuroscientists, clinicians, and researchers to drive innovations in dementia care. Their efforts focus on improving diagnostic methods, and Professor Ayton has played a leading role in bringing these advancements to public attention. She recently launched a podcast series through CREEDD, available on Apple Podcasts and Spotify, where experts share insights on dementia diagnosis and care, with the goal of providing useful information to families and individuals dealing with the condition.

Throughout her career, Professor Ayton has been dedicated to improving the lives of those affected by dementia. Her research spans prevention, diagnosis, and models of care, aiming to improve both quality of life and care outcomes. She is widely recognised for her contributions to ageing and health services research and continues to push forward in addressing the gaps in dementia care and public understanding.

As Dementia Action Week unfolds, Australians are being asked to take the time to learn more about the condition. Whether through small gestures, adapting environments, or simply understanding the symptoms, creating a more inclusive society is within reach. Professor Ayton’s work is a reminder that by listening, learning, and acting, we can all play a part in shaping a future that better supports those living with dementia.


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